Personal Data Collection Risks in a Post-Vaccine World

Personal Data Collection Risks in a Post-Vaccine World

Edited by Colette Mazzucelli
James Felton Keith
C. Ann Hollifield
Foreword by
Afterword by

Anthem Ethics of Personal Data Collection

The editors observe that in key texts written to teach international relations less mention is made of personal data collection risks in countries around the globe.

EPUB, 242 Pages


January 2023

£25.00, $32.00

PDF, 242 Pages


January 2023

£25.00, $32.00

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About This Book

The literature that references personal data collection risks is growing amidst international scandals, notably the Cambridge Analytica/Facebook interference in the Brexit referendum and 2016 US Presidential election as well as other elections in countries throughout our world. Questions of fundamental importance to the study and practice of international relations are being asked as concerns are expressed, including the most pressing that speak to accountability, the ethics of use in local areas, and the impact on the vulnerable populations that information and communications technologies (ICTs) promise to serve. Yet, the editors observe that in key texts written to teach international relations, less mention is made of personal data collection risks in countries around the globe. This book addresses this significant omission in the literature. The editors and contributors to this volume consider the limitations of existing theories in international relations to address the present context, as personal data collection risks become more significant in a COVID-19 world.


"This groundbreaking volume, which contains a highly original collection of chapters that share coherent structure, themes, and voice, is perfectly suited for an audience of scholars and practitioners working in genocide studies, humanitarianism as well as peace education and may be assigned to graduate level courses on post-conflict reconstruction" — Douglas Irvin-Erickson, Assistant Professor and Director, Genocide Prevention Program, Jimmy and Rosalynn Carter School for Peace and Conflict Resolution, George Mason University.

"This volume addresses an important topic – data and privacy in the post-pandemic world – using case studies from countries around the globe and applying different theoretical perspectives. It will be a valuable resource for scholars as well as practitioners working in the diverse areas of development, health policy, and other fields" — John S. Van Oudenaren, Editor in Chief, China Brief; China Program Manager, Jamestown Foundation.

"In cases ranging from breeches inherent in personal data collection by Facebook to analysing ethical dimensions of future digital research, including fieldwork in post-conflict Bosnia- Herzegovina, to an exploration of the distorted ‘marketplace of ideas’ allowing extremist views in Myanmar to flourish, contributors illuminate ethical considerations facing present and future generations”— Spencer Lord, Author, The Brain Mechanic, Human Rights Activist, and Web3 Consultant.

‘This book aligns with my own thinking and practice as an intercultural entrepreneur and has given me language, while revitalising my understanding around the responsibilities of government and non-government agents, in the ethical use of technology for data collection. The authors of this volume are invested in superseding moribund structures with an actionable, practical and equitable redistribution of agency worldwide to the benefit of all. This is not a utopian quest; it is grounded with real-world examples and case studies as well as a full awareness of those actors who would stand in the way of an inclusionist future with agency for all. This volume includes practical suggestions on how to respond effectively to such actors. Its contents are highly recommended for anyone who wants a healthier, happier future for humanity.’ Peter Mousaferiadis, CEO-Founder of Cultural Infusion (Australia)

‘The paperback edition of Personal Data Collection Risks in a Post-Vaccine World appears at a critical moment in the development of digital technology. The velocity of data collection is increasing exponentially while governance and regulation continue to lag. The future of good governance depends on an ethical framework. Mazzucelli, Keith, Hollifield, Adams, and Grichting articulate important ethical principles in this wide-ranging and thorough volume. This book is sure to guide the governance of personal data collection given the risks posed for the next generation, and, as it does so, it will certainly steer debates in a fruitful new direction.’ Joel H. Rosenthal, President, Carnegie Council for Ethics in International Affairs

‘Inclusion, acceptance of diversity, fair distribution of resources between richer and poorer countries, and sustainable development are all essential elements for the survival of the human species. However, this truth is not widespread and present in the world population and, above all, among politicians. In fact, the pandemic has confirmed the need for a more cohesive and peaceful humanity, and yet, the experience has highlighted cynicism, lack of solidarity, mutual distrust between nations, and even between individuals. I am convinced that the research conducted in universities and research centres and the dissemination of the results achieved, with appeals to international institutions, are one of the few ways left to have hope in the future of the human species. This book is a good example of that conviction.’ Maria Del Zompo, Emeritus Professor, Department of Biomedical Sciences, Member of the National Health Council and former Rector (2015-2021), University of Cagliari, Italy

‘Personal data collection is a growing concern across industries and countries as data continues to gain in value and volume. This series of well-curated essays details often-overlooked concerns of how we collect, use, and interpret personal data in today’s world, thereby calling for serious reconsideration of current practices. Using a broad data assessment ranging from the war between Ukraine and Russia to the business impact of GDPR and US laws, this volume aims to ensure that the reader understands how data is not restricted to one industry or geographical location. Data impacts us all.’ Tiffany Johnson, Adjunct Professor, NYU, Consumer Behavior Founder, Xente Data, Former Ad Industry VP, Data and Innovation

‘This timely volume appears at a critical time as we live through an intersection of crises and worrying decline of traditionally understood civic rights. The impact of the COVID-19 pandemic has accelerated our awareness of technology, control, suppression of dissent, and the pervasive threats of surveillance capitalism. This book provides a cutting-edge appraisal of issues and themes in this rapidly evolving world order. Refreshingly dynamic and relevant, it is a manifesto for action and understanding of the critical importance of the links between human rights, technology, and personal autonomy in a dangerous world. It underlines the critical importance of diversity, equity, and inclusionism – from theories of equality to embedded best practice. Given the threats we face to democratic governance in a world of growing autocracy, this book provides compelling evidence of underlying patterns as well as potential alternatives.’ Maria-Antonia Guardiola, Strategy & Operations Associate Director and Chairwoman, Global Listening Centre, Director, Universal Learning Systems (Dublin and Barcelona), Professor, UOC Open University of Catalonia, Spain

‘Personal data collection from private and public companies, universities and nation-states creates one of the greatest quandaries for liberal democracies in the twenty-first century. In a variety of case studies ranging from countries in Europe as well as Africa and Asia, the contributors to this timely volume speak to the opportunities, challenges and risks that arise from the collection of personal data. For Association of Professional Schools of International Affairs (APSIA) schools, this collection is a vital reference as we jointly contemplate the implications for public health, public safety and orderly democratic transitions of the mass surveillance now affecting private citizens.’ David Vinjamuri, President of ThirdWay, Inc., Adjunct Assistant Professor, Marketing, NYU School of Professional Studies (SPS), Author, Accidental Branding: How Ordinary People Build Extraordinary Brands, (Wiley, 2008)

Author Information

Professor Colette Mazzucelli, Graduate Faculty, NYU New York, is founder and principal, LEAD IMPACT Reconciliation Institute and served as first president (Academia), 2020–2022, Global Listening Centre.

James Felton Keith is CEO at Inclusion Score Inc., chairperson of Keith Institute and lecturer at The University of Georgia’s Terry College of Business.

Dr. C. Ann Hollifield, Professor Emeritus, University of Georgia, is a scholar as well as a research and media management consultant. Her work focuses on international media economics, management, and audience data analytics.


Anthem Ethics of Personal Data Collection

Table of Contents

Acknowledgements; Foreword by Prof. John Sexton-President Emeritus, New York University Word Clouds by Leslie Elizabeth Prosy, New York University; Introduction by Colette Mazzucelli, James Felton Keith, and Andrea Adams; Part I Chapter 1 Data to the People? Surveillance Capitalism and the Need for a Legal Reconceptualisation of Personal Data beyond the Notion of Privacy Jakub Wojciech Kibitlewski; Chapter 2 Human Subjects, Digital Protocols: The Future of Institutional Review Boards (IRBs) and Digital Research in Vulnerable Communities Charles Martin-Shields and Ziad Al Achkar; Part II Chapter 3 Rome vs. Regions: Government in Italy during COVID-19: Implications for the Future of the European Union (EU) Christian Rossi, Colette Mazzucelli, and David C. Unger; Chapter 4 Roma Lives Matter under the COVID-19 Pandemic: But More So for Populist Nationalism Andras L. Pap; Chapter 5 Ethics of Personal Data Collection in Bosnia– Herzegovina (BiH) Mary Kate Schneider; Part III Chapter 6 Lessons from the Ebola Epidemic in Sierra Leone: The Importance of State, INGO, and Local Network Actors Thynn Thynn Hlaing and Emilie J. Greenhalgh; Chapter 7 The Digital ‘Marketplace of Ideas’: The Need for a Human Rights-Centred, Multi-stakeholder Approach to Cyber Norms Laura Salter; Conclusion by Colette Mazzucelli, Andrea Adams, and Anna Grichting; Afterword by Annette Richardson, Special Advisor, Office of the Executive Director and Under Secretary-General, UN Women; List of Contributors; Index


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